Toolkit

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care.

Organizations will share photos, stories and social media messages linked by an image of a heart globe – the 2019 World PH Day campaign symbol. The heart globe logo symbolizes unity and the need for greater awareness of the disease. The image was the choice of representatives from PH associations around the world.

The Pulmonary Hypertension Association has designed a toolkit with easy-to-translate English-language materials you may use to participate in the World PH Day campaign. From May 5 – May 31, please use the contents of this kit to:

  1. Encourage people to photograph themselves with a PH awareness message.
  2. Change your social media profile and cover photos to the 2019 World PH Day images (below).
  3. Share and repost participating organizations’ World PH Day campaign posts.
  4. Adapt the news release template for your organization.
  5. Post the World PH Day graphics included in this kit (below).

Social Media Graphics

Facebook Banner

Twitter cover

Profile photo

Social Media posts

Facebook and Instagram Posts

Schistosomiasis
Instagram: Have you heard of schistosomiasis? It’s a common parasitic disease in which the parasite’s eggs obstruct the pulmonary arteries and is the most common cause of pulmonary hypertension (PH) in the developing world. An estimated 20 million people worldwide mostly in Africa & Asia, develop a severe form of PH from schistosomiasis, which can be contracted through contact with freshwater. #WorldPHDay2019

Facebook: Today is #WorldPHDay2019 and we are making sure you know the signs, symptoms and risks for pulmonary hypertension (PH) worldwide. One of the ways people develop PH throughout the world is via complications from other diseases. For example, have you heard of schistosomiasis? It’s a common parasitic disease in which the parasite’s eggs obstruct the pulmonary arteries and it is the most common cause of PH in the developing world. An estimated 20 million people worldwide, mostly in Africa & Asia, develop a severe form of PH from schistosomiasis. It’s most frequently contracted via contact with freshwater. Those who use freshwater for activities such as drinking, bathing, washing or leisure can be at risk. Make sure you know the symptoms: visit WorldPHDay.org

Left Heart Disease
Instagram: Left heart disease (LHD) can be caused by coronary artery disease, high blood pressure, faulty heart valves and other damage that makes your heart work harder to pump blood, weakening it. Fatigue, swelling in your legs and feet, rapid or irregular heartbeat, reduced ability to exercise, persistent cough or wheezing with white or pink blood-tinged phlegm are all signs of LHD. #WorldPHDay2019

Facebook: In economically developed countries, PH is often seen as a common complication of left heart disease (LHD). LHD occurs when the heart is weakened over time by working too hard due to coronary artery disease, high blood pressure, faulty heart values or damage to the heart muscle. Fatigue, swelling in your legs and feet, rapid or irregular heartbeat, reduced ability to exercise, persistent cough or wheezing with white or pink blood-tinged phlegm are all signs of LHD. Here’s where to find help recognizing the symptoms that may put you at risk for PH associated with LHD. WorldPHDay.org

Lung Disease
Instagram: Even where you live can put you at higher risk of developing pulmonary hypertension (PH) if it’s a high-altitude location. #WorldPHDay2019

Facebook: Whether in between tasks or at the end of a long day, people from all ends of the earth need sleep to rest. Sleep-disordered breathing, like sleep apnea, can cause pulmonary hypertension (PH) due to scarring in the lungs. This is one of the many reasons that PH is a global health concern. PH can affect anyone of any age, race or ethnic background. Even where you live can put you at higher risk of developing PH. More than 140 million people worldwide live 10,000 feet or more above sea level. This puts them at greater risk for developing PH due to constriction of blood vessels, resulting in increased strain on the right heart over time. Learn more about how PH can impact you where you live. WorldPHDay.org

CTEPH
Instagram: CTEPH is a rare and progressive form of pulmonary hypertension (PH) caused by chronic blood clots in the lungs that become scar-like tissue blocking or narrowing the pulmonary arteries. A pulmonary thromboendarterectomy (PTE) procedure is typically performed to remove the clots that form in the lungs. #WorldPHDay2019

Facebook: Chronic Thromboembolic Pulmonary Hypertension (CTEPH) is caused by chronic blood clots in the lungs that become scar-like tissue blocking or narrowing the pulmonary arteries. CTEPH can be a cause of persistent shortness of breath that is otherwise unexplained. 1 in 25 of the 600,000 people who suffer pulmonary embolism each year could develop CTEPH. A pulmonary thromboendarterectomy (PTE) procedure is typically performed to remove the clots that form in the lungs. CTEPH can affect anyone so make sure you know the signs and symptoms by visiting WorldPHDay.org

Sarcoidosis
Instagram: Sarcoidosis patients who experience persistent, labored breathing should get screened for the presence of pulmonary hypertension (PH). Sarcoidosis tends to affect the African American population most commonly, with about 34 cases per 100,000 people. The cause of sarcoidosis remains unknown. #WorldPHDay2019

Facebook: Pulmonary hypertension (PH) is considered a serious complication of sarcoidosis. Sarcoidosis tends to affect the African American population most commonly, with about 34 cases per 100,000 people. The cause of sarcoidosis remains unknown. Sarcoidosis patients who experience persistent, labored breathing should be screened for the presence of PH. Make sure you know the symptoms. WorldPHDay.org

Visit World PH Day’s Facebook and Twitter pages.