Toolkit

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care.

Organizations will share photos, stories and social media messages linked by an image of a heart globe – the 2020 World PH Day campaign symbol. The heart globe logo symbolizes unity and the need for greater awareness of the disease. The image was the choice of representatives from PH associations around the world.

The Pulmonary Hypertension Association has designed a toolkit with easy-to-translate English-language materials you may use to participate in the World PH Day campaign. From May 5 – May 31, please use the contents of this kit to:

  1. Encourage people to photograph themselves with a PH awareness message.
  2. Change your social media profile and cover photos to the 2020 World PH Day images (below).
  3. Share and repost participating organizations’ World PH Day campaign posts.
  4. Adapt the news release template for your organization.
  5. Post the World PH Day graphics included in this kit (below).

Social Media Graphics

Facebook Banner

Twitter cover

Profile photo

Social Media posts

Facebook and Instagram Posts

Schistosomiasis

Facebook and Instagram: Schistosomiasis is the most common cause of pulmonary arterial hypertension (PAH) in the developing world, a widespread parasitic disease. Parasite eggs obstruct the pulmonary arteries, which can cause a severe form of PH that affects about 20 million people worldwide, mostly in Africa and Asia. It’s most frequently contracted by coming in contact with fresh water for drinking, bathing or washing. PAH can be heritable or may be associated with connective tissue diseases such as scleroderma or lupus. Learn more: WorldPHDay.org #WorldPHDay2020

Twitter: Have you heard of schistosomiasis? It’s the most common cause of pulmonary arterial hypertension in the developing world. About 20 million people, mostly in Africa & Asia, can develop a severe form of PH from schistosomiasis. WorldPHDay.org #WorldPHDay2020

Left Heart Disease

Facebook and Instagram: In economically developed countries, Group 2 pulmonary hypertension (PH) is the most common type of PH and is caused by left heart disease. In Group 2 PH, there are problems with how the heart squeezes or relaxes and/or issues with the left heart valves (think of them as little doors). That can make the heart unable to relax and keep up with blood returning from the lungs. A “backup” of blood raises pressure in the lungs. Congenital heart defects can also cause PH. Learn more: WorldPHDay.org #WorldPHDay2020

Twitter: Group 2 pulmonary hypertension is caused by left heart disease. It causes problems with how the heart squeezes or relaxes that make the left heart unable to keep up with blood returning from the lungs. WorldPHDay.org #WorldPHDay2020 WorldPHDay.org

Facebook and Instagram: Common symptoms of left heart disease are shortness of breath, fatigue, swelling in the legs and feet, chronic coughing or wheezing and fluid retention. Recognize the symptoms. Learn more: WorldPHDay.org #WorldPHDay2020

Twitter: Common symptoms of left heart disease are shortness of breath, fatigue, swelling in the legs and feet, chronic coughing or wheezing and fluid retention. WorldPHDay.org #WorldPHDay2020

Lung Disease

Facebook and Instagram: Those who live at higher altitudes could be at higher risk for developing Group 3 pulmonary hypertension (PH) from a shortage of oxygen. More than 140 million people worldwide live 10,000 feet (3,048 meters) or more above sea level. Living at those heights can constrict blood vessels, increasing strain on the right heart over time. Learn more. WorldPHDay.org #WorldPHDay2020

Twitter: Those who live at higher altitudes could be at higher risk for developing Group 3 PH. More than 140 million people worldwide live 10,000 feet+ above sea level. That can cause constricted blood vessels and increase strain on the right heart over time. WorldPHDay.org #WorldPHDay2020

Facebook and Instagram: Chronic obstructive pulmonary disease (COPD) can make it harder to take a deep breath. COPD causes restricted air flow in the lungs. This is most commonly caused by exposure to irritants that damage the lungs and airways. Pulmonary hypertension (PH) is a common complication of COPD due to the damage and changes COPD can cause to pulmonary artery vessels. Learn more. WorldPHDay.org #WorldPHDay2020

Twitter: COPD restricts air flow in the lungs due to irritants that damage the lungs & airways. PH is a common complication of COPD because it can damage & change pulmonary artery vessels. WorldPHDay.org #WorldPHDay2020

Facebook and Instagram: Sleep apnea is a potentially serious disorder that causes people to repeatedly stop and start breathing as they sleep, causing a shortage of oxygen or hypoxia in the lungs. Pulmonary pressures often worsen during sleep, making pulmonary hypertension (PH) a common complication. Learn more about PH: WorldPHDay.org. #WorldPHDay2020

Twitter: One thing we all have in common is our need for sleep. Poor sleep can cause breathing disorders like sleep apnea. Pulmonary pressures often worsen during sleep, making PH a common complication of sleep apnea. WorldPHDay.org #WorldPHDay2020

CTEPH

Facebook and Instagram: A pulmonary embolism (PE) is a blood clot that eventually gets trapped in the lungs. People who have had PEs are at greater risk to develop more clots. New clots can cause high blood pressure in the lungs, or chronic thromboembolic pulmonary hypertension (CTEPH). Learn more. WorldPHDay.org #WorldPHDay2020

Twitter: A pulmonary embolism (PE) is a blood clot that eventually gets trapped in the lungs. People who have had PEs are at greater risk to develop more clots, which can cause high blood pressure in the lungs or CTEPH. WorldPHDay.org #WorldPHDay2020

Sarcoidosis

Facebook and Instagram: Pulmonary hypertension (PH) is a serious complication of sarcoidosis, which has no known cause. The disease makes the immune system overact and develop clusters of inflamed tissue in various organs. Sarcoidosis most frequently affects African Americans, with women at higher risk. Sarcoidosis patients who experience persistent, labored breathing should be screened for PH. WorldPHDay.org #WorldPHDay2020

Twitter: :PH is considered a serious complication of sarcoidosis. Sarcoidosis most frequently affects African Americans, with women at higher risk. Sarcoidosis patients who experience persistent, labored breathing should be screened for PH. WorldPHDay.org #WorldPHDay2020

Gráficos de medios sociales


Graphiques pour médias sociaux

Facebook Banner

Social Media Posts

 

Visit World PH Day’s Facebook and Twitter pages.