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The world’s platform for change (WPHD - 2021) The world’s platform for change Online petition on access to treatment Learn more and support Accelerating EU research for rare diseases – the case of pulmonary hypertension (WPHD 2021) 21 April, 2021 | Webinar 15:00–16:30 CET Watch the recording

ABOUT WORLD PULMONARY HYPERTENSION DAY

World Pulmonary Hypertension Day is an annual global event to raise awareness of pulmonary hypertension (PH), a severe condition affecting the lungs and heart.

On May 5, more than 80 organizations around the world will participate in World PH Day activities to raise awareness of this frequently misdiagnosed disease and celebrate the lives of people living with PH.

Due to the COVID-19 pandemic it is still not possible to organize in-person events in many countries, but with a great variety of initiatives we make WorldPHDay remarkable and as colorful as possible.

The global PH community is encouraged to raise awareness of PH by sharing photos of activities on Facebook, Twitter or Instagram using the #PHmatters and #WorldPHDay2021 hashtags. If you are having an online event, please add it to the World PH Day calendar. In-person events are also more than welcome.

We filed an online petition to ensure better access to treatment. You can learn more about this initiative and support it here.

Series of free webinars will provide insight into interesting topics, as nutrition, how to cope with everyday life and what is the importance of the quality of life measures.

The global PH community is also encouraged to address the policy makers and decision makers to support and facilitate research. A high-profile event with the participation of Members of the European Parliament was organized on the 21st of April to mark World PH Day. The recording is available from here.

What People Say?

“I had heard that air is rare as we go high over the altitudes. Luckily for me, air is rare right where I am. Thanks to gravity which gave me all these experiences of lightheadedness right where I am. What I see depends on what I’m looking for. Before I was diagnosed with Pulmonary Artery Hypertension I breathed, after diagnosis I breathe, now, I’m conscious of it, I respect it, I cherish it. I want to live in every moment of my life and breathe in only as deep as I can and leave behind enough carbon credits for the future generation to encash.”

Parul Shah

Mumbai, India

“Don’t feel shy to breathe easy.”

Likhith Raghavendra Reddy

Guntur, India

“Pulmonary Hypertension is a deadly disease that can often go misdiagnosed or undiagnosed for years. World PH Day offers hope for awareness so there can be more accurate and timely diagnosis, better treatments, improved quality and length of life, and hopefully even a cure someday!”

Roshni Chaudhari

Mumbai, India

“Three things come to my mind about World PH Day: life is in the air, all in one breath and breath mission.”

Vittorio

Italy

“WPHD is an opportunity for us to direct our energy and focus on creating awareness for Pulmonary Hypertension. When I hear WPHD I think of a focused targeted project – combining resources and ideally a joint force of awareness – a communal project. I believe we have power in numbers and the ability to really extend our reach to significant audiences.”

Maayan

Israel

“WPHD means the opportunity to spread awareness about pulmonary hypertension and the chance to draw attention to the lives of patients with this disease and the memory of those who can no longer be here with us.”

Dominika

Czech Republic

“Great chance to get our members and friends together, united for common cause and have some fun while we are at it!”

Peter

Slovakia

Toolkit

World PH Day - Toolkit quote (English)

Toolkit

For additional language versions contact us or your local association here.

World PH Day - Toolkit quote (Spanish)

Herramientas

Para obtener versiones de otros idiomas, contáctenos o con su asociación local aquí.

World PH Day - Toolkit quote (France)

Boîte à outils

Pour toute version dans une autre langue, merci de prendre contact avec nous ou avec votre association locale.

Participating Associations

Our activities in numbers

80

Participating patients associations in 2020

3728

World Pulmonary Hypertension Day followers on Facebook

152

Photos uploaded from World PH Day 2020

World PH Day Events


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